“ a lot,” Bella said over a Zoom call on Tuesday while sitting on her hospital bed, recalling the rapid events that recently transpired. The team at SickKids had found a collateral vessel that made the transplant possible. After three years on the transplant waitlist, it was finally time. In mid-August, while eating lunch at home in Swift Current, Sask., Thomson received a phone call. For us to be able to expand on our advocacy for medical families and kids with rare diseases … It’s so heartwarming,” Thomson said. “We will not lose our brave,” they pledge in their videos.īella Thomson, known to more than six million TikTok followers as Bella Brave, poses for a photo (Supplied).“We wanted to spread joy, make people laugh. It was an emotional pill to swallow, but the Thomsons, including Bella’s 4-year-old brother Waylon and father Lyle, kept creating videos for their TikTok account that almost immediately went viral after posting Bella’s first video around early 2021.īella's feed is filled with her dancing in hospital hallways and strutting towards the camera with a hand gripping her hip, while her mom wheels an IV pole behind her. “ There’s nowhere to go from here,” Thomson said in a video posted in June. A live-changing bowel transplant was no longer safe for Bella. Just a few months ago, the Thomsons received news they had dreaded. “Some didn't get to bring their little ones home, and I did,” she said. But her pivot to positivity came with a perspective that evolved as she saw moms, dads and caregivers at the hospital that had it worse. No one could fix it,” Thomson said.īella Thomson smiles in her hospital bed in Toronto (Supplied). I was very angry watching my firstborn go through this and then not have anyone tell me how to fix it. “Within Bella's first year of life in hospital, everything being so rare, so painful, so exhausting living in hospital. Since then, Bella has received a bone marrow transplant and suffered septic shock four times – two of which healthcare professionals told Thomson they couldn’t explain how she survived. “To be that proud of my daughter, it makes me cry.” ‘NO ONE COULD FIX IT’Īt just three days old, the Saskatchewan-born miracle child underwent her first surgery - a count that would amount to approximately 30 operations with her first two years of life spent in hospitals in Saskatchewan and Alberta. She could be so angry and bitter … and she does the opposite, and it just blows me away,” Thomson said, her voice breaking as she described Bella’s bravery. “I’m just still in awe of the way she looks at the world. “We were so used to living in fear and not knowing if she would survive without this transplant,” Kyla Thomson said about her daughter in an interview outside the Hospital for Sick Children in Toronto.īella Thomson, known to 6.3 million TikTok followers as Bella Brave, was born with a genetic spontaneous mutation of three rare diseases – Severe Combined Immunodeficiency (SCID), Hirschsprung’s Disease and Dwarfism – that left her with no immune system and a dead bowel. A beloved Canadian nine-year-old, known as Bella Brave to those on TikTok, underwent a life-saving bowel transplant after a three-year wait for a rare disease she has been fiercely battling since birth.
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